This article is shared with LebTown by content partner Spotlight PA.
By Ese Olumhense of Spotlight PA
HARRISBURG โ In the weeks since Pennsylvania began its coronavirus vaccine rollout, the Wolf administration has stood by its localized, do-it-yourself system for finding and booking appointments, despite widespread frustration among residents.
โThe relationship that folks have with their provider or with their pharmacists is what was best suited to actually administer the vaccine,โ acting Health Secretary Alison Beam said in January. โAnd so we are allowing those providers and those pharmacists to be able to use their scheduling systems.โ
But the stateโs patchwork approach has left particularly at-risk residents and communities at a tremendous disadvantage. Older Pennsylvanians, who are supposed to be among the first in line to get the vaccine, are struggling with clunky and disjointed online sign-ups and phone numbers that get them nowhere, while those who are more tech-savvy jump ahead.
And more than a month into the rollout, the Pennsylvania Health Department hasnโt done any targeted outreach on the vaccine to communities that donโt speak English, many of whom have been disproportionately affected by the pandemic.
The stateโs map of vaccine providers โ which includes information on how and where to book coveted appointments โ appears only in English. And a translated fact sheet on the vaccine for Spanish speakers hasnโt been updated since late December, before adults 65 and over and younger people with select health conditions became eligible.
Roughly 1.4 million people โ more than 11% of the state โ speak languages other than English at home, according to U.S. Census data. The majority of those who have been vaccinated so far, state data show, have been white or of an unknown race.
In the absence of official messaging from the state, advocates who serve these communities said they have been deluged with requests for information on the vaccine. Misinformation has circulated quickly.
โThe communication of who is eligible for the vaccine has not been done adequately in any other language besides English,โ said Laura Perkins, an organizer at Casa San Jose, an organization that serves immigrants in Allegheny County and elsewhere in southwestern Pennsylvania.
โWe work primarily with the Latinx community,โ Perkins added, โbut we also have a large Russian population, Chinese population, Nepali population, Somali Bantu population, many folks that speak Arabic. And the only attempt at another language is in Spanish and that information is not updated.โ
Officials are โworking diligentlyโ on improving language access, Lindsey Mauldin, Department of Health senior adviser, said at a news conference last week. On the departmentโs website, information about COVID-19 can be auto-translated, though the governorโs task force on COVID-19 health disparity recommended in August that related materials โbe properly translated by professional translators, instead of machine translation.โ
โWe are working with our health equity response team to ensure more equity among our vaccine distribution,โ Mauldin said, though she did not offer a timeline for updated materials.
But this isnโt the first time the Wolf administration has failed to prioritize outreach and materials for those who do not speak English. Last year, after Spotlight PA reported on the lack of coronavirus-related information available in other languages, Pennsylvania added Spanish captions to its daily briefings and updated its website to include fact sheets and other materials translated into Spanish. The state also launched a much-needed rental relief program without forms available in languages other than English.
The situation for Spanish speakers is slightly better in Philadelphia, which is managing its own vaccine program. The city has an online interest form in both English and Spanish. But itโs not enough, some residents and advocates said.
โWe need numbers where we can call people who speak our language to ask questions and to be able to get answers around the vaccine that understand what weโre saying,โ Claudia Garcia of Philadelphia, who cleans houses and provides in-home elder care, told Spotlight PA through a translator.
Language access isnโt the only problem vaccine-seekers have sought help with, said Nicole Kligerman, Pennsylvania director of the National Domestic Workers Alliance.
โThere is limited knowledge of using tech,โ Kligerman said.
Philadelphia officials are using a system that collects information, like age and occupation, on users who are interested in receiving the vaccine. On its website, the cityโs Department of Health says it uses the information to alert residents to places they can receive the vaccine when itโs their turn.
But many members of the National Domestic Workers Alliance do not have access to smartphones or computers, much less the internet or even an email address.
โAnd even if they do, the registration page is not necessarily user-friendly for everybody,โ Kligerman added of the Philadelphia platform.
Accessing information has been similarly dire for older Pennsylvanians, who told Spotlight PA the stateโs provider map โ the only vaccine access tool the Department of Health has released โ is essentially useless. Adults over 70 account for almost 80% of those who have died from the virus in Pennsylvania. And while most residents of the stateโs nursing homes have been offered a vaccine through a federal program, the rollout is going much slower in other long-term care facilities. Many seniors who live independently, meanwhile, are on their own.
โItโs been frustrating,โ said 70-year-old Richard Schuetz. โAnd what happens when people get frustrated? They lose confidence in the government.โ
When vaccine seekers called providers directly to make appointments using numbers listed on the stateโs map, some told Spotlight PA they were directed back to online portals. Voice mails, many reported, went unreturned. And when they were available, vaccine slots were snapped up quickly.
Fred Hunt, who lives in Bradford County, even synchronized operations with a family member to sign up for appointments online for himself and his wife through a hospitalโs online portal.
โBy the time my daughter-in-law and I got it coordinated so weโd both have [appointment] times that were similar, all the times were gone,โ the 80-year-old said.
โIt was five minutes,โ he added. โIn five minutes all 400 slots were gone.โ
โItโs like youโre trying to get concert tickets,โ said Sue Burnside, who lives in the Lehigh Valley area, describing her struggle to make vaccine appointments for her mother, 85, and father, 90, who live in Harrisburg.
โIโve literally spent more than five days on the computer checking the various links,โ Burnside said, detailing the process of finding appointments. โChecking on all the links โ minimally โ every half-hour. Six oโclock in the morning until nine or 10 at night.โ
Eventually, she was able to book vaccine appointments for her parents โ in two different places on two separate dates.
A spokesperson for the state Health Department said older Pennsylvanians can call 877-PA-HEALTH to get help finding a vaccine provider.
โThey cannot make the appointment for people, but they can help them locate providers near them and give them the contact information to make the appointment,โ a spokesperson said. โMeanwhile, we are working with the organizations that support older Pennsylvanians to increase the avenues available for them to connect with a vaccine provider.โ
The spokesperson did not know how many multilingual speakers staff the hotline.
Pennsylvania officials are grappling with problems outside their control, primarily a limited supply of vaccines from the federal government. President Joe Biden has promised states more doses in the coming weeks, but Pennsylvania officials say this still wonโt be enough to vaccinate all 4 million people eligible in the first phase in a timely manner.
Still, some states โ including California, New Mexico, and New Jersey โ have implemented centralized sign-up systems that alert residents when they are eligible to schedule an appointment.
Pennsylvaniaโs plan, meanwhile, has been โa competition in which the fittest and most technologically adept โ who frankly, arenโt the people we are really charged with serving first โ get the prize,โ Susan Friedberg Kalson, CEO of Squirrel Hill Health Center in Pittsburgh, told a state House panel last week.
A centralized system could minimize the problem caused when appointment seekers schedule visits at several places then fail to show up to a planned appointment, Kalson and other administrators said at Wednesdayโs hearing.
โMany people register at multiple locations, compounding the problem of no-shows and potential waste,โ she added.
Centralizing the stateโs vaccine sign-up system would likely present additional technological considerations, other experts said. To be able to schedule appointments and share records, hospital IT systems would have to work together, something they donโt usually do, Spotlight PA previously reported.
Speaking to the House Health Committee last Wednesday, Beam, the acting health secretary, again defended the agencyโs response, saying that states that centralized their systems โhave failed to be successful.โ
โThere is not enough vaccine, with or without a registration system,โ she added. โAnd a registration system wonโt fix that limiting factor.โ
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